April is Autism Awareness Month, so I figured I would post something about it. Although we suspected that Jack was on the autism spectrum from when he was about 2.5 or 3 years old, speech therapy, occupational therapy, and educational assessments took priority. He didn't get tested until this past summer.
Although none of us, Jack included, were surprised at Jack's diagnosis of Level 1 autism (his diagnosis akin to what was formerly known as Asperger's Syndrome), we've all needed some time to ruminate on what the diagnosis means for Jack and us today and in the future.
The diagnosis made a significant impact on Jack's life and simultaneously none at all - because he's still the same person with the same strengths, weaknesses, interests, aptitudes, and incredible heart. It has, however, allowed us to better advocate for him academically and socially (and coach him to better advocate for himself). We have a better idea of when to push and when to let things go.
Jack is quite open with his diagnosis, is intent on embracing his strengths, and is open to some coaching from us about social situations. He continues to surprise us with the things he tries and his positive approach to learning.
When I asked Jack the number one thing he wanted other people to know about autism and him having autism, he said: Sometimes when I get overwhelmed or stressed out or even excited, I need to get that energy out. I usually do that by making what I call "explosion noises." I don't do it to be loud or obnoxious. I do it because it helps me better focus on school work or cope when there are many people around and I need a break. When I can't jump around and make explosion noises sometimes I fidget to help me focus, but I'd prefer to be making explosion noises.
As per usual, I have gone into research mode, and a good portion of my reading list is now comprised of books about ASD. I am learning a lot and hoping to share that information with the people in our lives to better help Jack thrive.
Suppose you are looking to learn more about ASD or to support organizations. In that case, I recommend connecting with resources and causes that have people with autism at the table, with seats on their boards, and as prominent voices in their community.
